Social media are a vital link for people with health concerns who find in Web communities a valid and comforting source for information exchange, debate, and knowledge enrichment. This aspect is important for people affected by chronic diseases like multiple sclerosis (MS), who are very well informed about the disease but are vulnerable to hopes of being cured or saved by therapies whose efficacy is not always scientifically proven. To improve health-related coping and social interaction for people with MS, we created an MS social network (SMsocialnetwork.com) with a medical team constantly online to intervene promptly when false or inappropriate medical information are shared.

Health-Related Coping and Social Interaction in People with Multiple Sclerosis Supported by a Social Network: Pilot Study With a New Methodological Approach / Lavorgna, Luigi; Russo, Antonio; De Stefano, Manuela; Lanzillo, Roberta; Esposito, Sabrina; Moshtari, Fatemeh; Rullani, Francesco; Piscopo, Kyrie; Buonanno, Daniela; Brescia Morra, Vincenzo; Gallo, Antonio; Tedeschi, Gioacchino; Bonavita, Simona. - In: INTERACTIVE JOURNAL OF MEDICAL RESEARCH. - ISSN 1929-073X. - 6:2(2017), pp. 1-10. [10.2196/ijmr.7402]

Health-Related Coping and Social Interaction in People with Multiple Sclerosis Supported by a Social Network: Pilot Study With a New Methodological Approach

MOSHTARI, FATEMEH;RULLANI, FRANCESCO;
2017

Abstract

Social media are a vital link for people with health concerns who find in Web communities a valid and comforting source for information exchange, debate, and knowledge enrichment. This aspect is important for people affected by chronic diseases like multiple sclerosis (MS), who are very well informed about the disease but are vulnerable to hopes of being cured or saved by therapies whose efficacy is not always scientifically proven. To improve health-related coping and social interaction for people with MS, we created an MS social network (SMsocialnetwork.com) with a medical team constantly online to intervene promptly when false or inappropriate medical information are shared.
Web medicine; digital health; eHealth; multiple sclerosis; social media; social network
Health-Related Coping and Social Interaction in People with Multiple Sclerosis Supported by a Social Network: Pilot Study With a New Methodological Approach / Lavorgna, Luigi; Russo, Antonio; De Stefano, Manuela; Lanzillo, Roberta; Esposito, Sabrina; Moshtari, Fatemeh; Rullani, Francesco; Piscopo, Kyrie; Buonanno, Daniela; Brescia Morra, Vincenzo; Gallo, Antonio; Tedeschi, Gioacchino; Bonavita, Simona. - In: INTERACTIVE JOURNAL OF MEDICAL RESEARCH. - ISSN 1929-073X. - 6:2(2017), pp. 1-10. [10.2196/ijmr.7402]
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Utilizza questo identificativo per citare o creare un link a questo documento: http://hdl.handle.net/11385/175626
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